The husband has decreed that pacis are gone as of today. He told Kylie before I got up this morning. I agree that the time is here, but why did he decide this when he’s leaving for a work trip this afternoon. I feel like I have to go through with it since he told her. So alone with a newborn and a two year old who has been fighting naps anyway. Luckily she only gets them at naptime and bedtime, but it’s still going to be awful.
Congenital Hypothyroidism. Because I'd like to say it one more time...
Once we got Emma home from NICU a week after she was born, we had a weekend of bliss where we believed all of her health problems were behind her. Then on Monday Jason brought Kylie to the pediatrician after some suspect symptoms that could have been an ear infection manifested over the weekend.
Kylie was fine. But the pediatrician wanted to talk about Emma. My husband was blindsided with news that there was a thyroid problem that showed up in the newborn screen. He didn’t understand a lot of what she said because he was shocked. He grasped that it could be serious and we’d be seeing a specialist and that I should call the pediatrician.
We repeated some labs at the hospital the next day and went to Emma’s appointment with the pediatrician on Wednesday.
Congenital hypothyroidism. Her thyroid gland isn’t producing hormones like it should (we later learned from the endocrinologist that she most likely doesn’t have a thyroid gland) so she’ll have to take a pill every day for life. Luckily, treatment was started early so she should develop and grow normally. We’ll just have to do bloodwork often to make sure she’s getting the right hormone dose. If untreated this can lead to severe mental retardation, growth retardation, and poor muscle tone among other things. Scary stuff to hear.
No one wants to hear that there’s something wrong with their child. Its the worst. But from all I’ve learned over the last week and a half, if I had to pick something to be wrong, this is it. She wont know she’s sick. She wont need surgery. Her mortality isn’t affected. She’ll be fine. Sure bloodwork sucks, but it could be so much worse.
This precious little girl is so sweet and has such an easy going personality so far, but she sure has kept us on our toes.
(And just in case you were wondering, our gorgeous, spitfire curious, strong willed two year old is healthy as a horse)
Follow-up appointment for Miss Emma Rose at the pediatrician this morning. She weighed 7lbs 6oz from 6lbs 14oz last Wednesday and 6lbs 8oz at birth. I was pretty pleased. Then the pediatrician said she would have liked to see her gain some more and wanted a weight check again next Friday. I thought it was strange, but chalked it up to her being super-cautious with everything that’s going on (which I need to post about next).
I got in the car and looked at the clinical summary and noticed that the nurse mis-keyed her weight into the computer. It said 7lbs 0oz.
Here’s the deal:
While Emma was on an IV, I was pumping and storing milk. Now that she’s eating, she doesn’t empty one breast before getting full. By the next feeding the other feels engorged and the one she ate from before is really full.
It takes long enough to get her to eat; she’s still getting the hang of it. I really don’t want to have to pump after I feed her every time.
If this continues, I assume my supply will go way down. Will it come back? Or should I be attached to baby and pump for the next several weeks?